RDCom was born within the SPINE Foundation, a NPO dedicated to approach and care of Rare Diseases for more than 17 years.
Thanks to this experience, it was clearly detected the necessity of connecting all RD Community members to respond to their different needs.
RD are pathologies of very low prevalence, 1 in every 2000 cases. There are more than 8000 rare diseases described in the world.
As they are low-incidence diseases, resources allocated to research are insufficient and only 5% of pathologies have a treatment.
It is estimated that there are 500 million people worldwide affected by one of these conditions, representing 7% of the population.
The RDCom team is led by its founding partners: